HARC Track (Virtual Conference Agenda)
(Monday, October 19 - Wednesday, October 21)

HARC Agenda – Monday, October 19

10:45 am – 11:25 am (ET)

Opening - Michael Villaire, MSLM
Institute for Healthcare Advancement


Plenary: Working Together to Support Health Literacy

Dr. Rima E. Rudd 
Harvard T.H. Chan School of Public Health

Description: 

This opening talk sets the stage for one of the conference themes – that of deeper collaboration amongst us. First though, it is important to note that our efforts focused on health literacy offer opportunities to contribute to social justice. Our emphasis on dignified exchanges and reduced barriers to information, action, care, and services sounds an optimistic note during these difficult times. This collaborative conference offers an opportunity to shape strong and broad partnerships and perhaps a health literacy collectivity that eliminates some of the traditional divides amongst us -- whether it be based on our identify as researchers, practitioners, or policy makers or based on our work focus on activism, disaster mitigation, health care, environmental health, occupational health and safety, or public health. We look at some of the downfalls of segregated areas of work, move to examples of productive achievements from collaborative efforts, and note opportunities to help shape new research, further enhance practice, and support new public policies.

Learning Objectives:

  • Conference participants will identify at least one action they can take to enhance the ability of policy makers and practitioners to shape research questions from their experiences and observations.
  • Conference participants will identify at least one change that can further support efforts to turn research findings into practice and policy initiatives.
  • Conference participants will identify at least one outreach strategy to bridge the divides amongst those focused on a variety of non-medical health literacy concerns.
  • With a collectivity in mind, conference participants will submit at least 2 ideas for new conference themes and structures.

11:30 am – 1:00 pm (ET)

Breakout Session A
Workshop: Public health literacy: what does it mean and how can we measure it?

Gillian Rowlands
Newcastle University

Diane Levin-Zamir
University of Haifa Israel

Description:

Public health literacy widens the health literacy focus from skills to promote individual health, to skills to promote public health. Often what is good for individual health is also good for public health, but at times these two aspects of health literacy may be in conflict. This workshop will use presentations and plenary group work to better understand the concept of public health literacy and its constituent components: conceptual foundations, critical skills, and civic orientation. We will use the exemplar of actions required from individuals to reduce the community transmission of the SARS-CoV-2 virus, which causes Covid-19. Specifically, we will identify areas where individual health literacy and public health literacy are concordant, and areas where there is dissonance.

We will then break out into small groups, one for each of the three constituent components of public health literacy, and start to explore potential items to measure in each area. We will then reconvene in plenary to hear the outcomes of each group.


11:30 am – 1:00 pm (ET)

Oral Abstract Session I

Moderator

Nancy Morris


Implementing a Low Literacy, Multimedia Health Information Technology Intervention to Enhance Patient-Centered Cancer Care in Safety Net Settings

Elizabeth A. Hahn
Northwestern University Feinberg School of Medicine


Does Health Literacy Influence Advance Care Directives of Cancer Patients?

Katherine Waite
Boston Medical Center


Deaf Community’s Experience of COVID-19

Daphine Postl
Rochester Institute of Technology


Limited Health Literacy in Midlife and its Associations with Risks for Later Cognitive Decline

Lauren A. Opsasnick
Northwestern University



1:00 pm – 1:50 pm (ET)

Lunch

Special Interest Group:
IHLA Child and Family Health Literacy SIG: Responding to Coronavirus-Related Health Literacy Needs in Children and Families

Sasha Fleary
CUNY Graduate School of Public Health and Health Policy

Andrea Morrison
Medical College of Wisconsin

Description: 

Caring for children's health is complex and requires specific health literacy skills. The International Health Literacy Association (IHLA) Child and Family Health Literacy Special Interest Group’s mission is to advance health literacy-related research, practice-/organizational-level change, education, and policy/advocacy to improve the health and well-being of children and adolescents. The group will focus on discussions and initiatives around evidenced-based solutions in pediatric health literacy research, education, and practice-/organizational-level change. This SIG aims to improve the health and wellbeing of children and adolescents by: (1) promoting the consideration of health literacy in research involving children, adolescents, and families; (2) creating networking opportunities to encourage high quality collaborative research; and, (3) advancing and disseminating knowledge to academic and non-academic stakeholders.


1:00 pm – 1:50 pm (ET)

Lunch

Special Interest Group:
Advocating for Policy: How to Champion Health Literacy?

Teresa Wagner
University of North Texas Health Science Center

Elena Carbone
University of Massachusetts, Amherst

Chris Trudeau
University of Arkansas, Little Rock, Bowen School of Law

Joy Deupree
University of South Carolina, College of Nursing

Orkan Okan
Bielefeld University

Description:

This session will: 1) examine existing health literacy policies across the localities, states or countries assimilating common attributes vs. outlying tenets and 2) compare/contrast these policies with the World Health Organization Health Literacy recommendations. Special Interest Group members will collaborate to identify existing policies and connect with IHA or IHLA members within the locality, state or country where the policy exists to potentially contribute to the discussion. Those sharing will discuss how the policy was championed and its impact on health literacy practices within that area. This panel will empower attendees with tools for championing health literacy policy while cataloguing existing health literacy policy for reference.


1:50 pm – 2:20 pm (ET)

Introduction
Michael Paasche-Orlow, MD, MA, MPH
Boston University Medical Center

Plenary: Race, the literacy gap, and the Pandemic

Ray Block, PhD

Description:

By drawing from recent research and experiences as a community-engaged pollster, this session explores some health literacy barriers among African Americans while considering potential strategies for overcoming them.

Objectives:

  • Discuss racial-group differences in how the COVID-19 pandemic is experienced
  • Discuss racial-group differences in how COVID-19 is understood
  • Discuss racial-group differences in the intent to adhere to public health recommendations
  • Describe communication strategies for overcoming racial and ethnic disparities in health communication

2:30 pm – 4:00 pm (ET)

Breakout Session B

Panel: Digital Health Literacy and US College Students in the Time of COVID-19

Tetine Sentell
University of Hawai‘i at Mānoa

Phillip Massey
Drexel University Dornsife School of Public Health

Jennifer Manganello
University at Albany School of Public Health

Kevin Dadaczynski
Fulda University of Applied Sciences

Description:

The health literacy of college and university students has become a topic of increasing relevance during the COVID-19 pandemic. College students have extensive social/social media networks, often live and interact in close quarters, travel from home to school within and across states, and tend to use digital sources to find information. Health-related decisions and behaviors of these students will impact COVID-19 infection rates, health outcomes, and the economic welfare not just of campuses, but also of surrounding communities and local economies. A better understanding of health literacy and digital health literacy for this population is critical to building useful programs, developing policies, and disseminating relevant health information across colleges, universities, health systems, and public health departments. In this panel, we will discuss current research on the health literacy and digital health literacy of U.S. college students.


2:30 pm – 4:00 pm (ET)

Oral Abstract Session II

Moderator

Joy Deupree


Is it language or health literacy?  Unpacking barriers to refugee health

Iris Feinberg
Georgia State University


Health Literacy in Context: Patients Perceptions about what Health Literacy Skills they Perceive as Important when Navigating through the Healthcare System, and in Managing their Health

Venkata Ratnadeep Suri
Indraprastha Institute of Information Technology


Health Literacy and Intercultural Competence Training among Second Year Nursing Students

Michelle M. Ogrodnick
Georgia State University


Organizational assessment of health literacy of an academic medical center

Gyusik Park
University of Alabama School of Medicine


HARC Agenda – Tuesday, October 20

10:45 am – 11:25 am (ET)

Opening - Cynthia Baur, PhD
UMD Horowitz Center for Health Literacy


Plenary: Healthy People 2030 Health Literacy Definitions: Historic and Historical.

Cindy Brach
Agency for Healthcare Research and Quality

Description:

Learn what is new, and not so new, about Healthy People 2030’s definitions of health literacy. Cindy Brach, Co-Chair of the Department of Health and Human Services’ Health Literacy Workgroup and a member of the Healthy People Health Communication and Health Information Technology Workgroup, will describe the process of developing the definitions and their implication for research and practice.

Objectives:

Attendees will learn:

  • The new Healthy People 2030 definitions of health literacy
  • How they build upon 20 years of health literacy scholarship
  • How the definitions were developed
  • How they affect researchers and practitioners

11:30 am – 1:00 pm (ET)

Breakout Session C
Workshop: Is Your WebLitLegit? Helping Teens Discern Health Information Truth from Trash on the Internet

Teresa Wagner
University of North Texas Health Science Center

Carol Howe
Texas Christian University

Tracy Adame
Medical City Dallas

Description:

The WebLitLegit workshop will be conducted using a train-the-trainer model previously used with schools, libraries, museums, and other community partners serving teen audiences. WebLitLegit workshop participants will be shown the engaging YouTube video and short didactic PowerPoint with demonstration of knowledge and skills needed to locate and appraise online health information. The majority of the WebLitLegit workshop will be dedicated to practice and direct feedback, attendees will practice coaching skills and how to complete a teach-back demonstration with a teen locating and appraising a health website. The presenters will educate attendees on creative perspectives to teaching teens (and other age groups) the difference between commercial health information sites (WebMD) and evidence-based resources (MedlinePlus).


11:30 am – 1:00 pm (ET)

Oral Abstract Session III

Moderator

Stacy Bailey


The use of a multi-component app-based intervention to build health literacy skills: An Australian feasibility study*

Jennifer Isautier
University of Sydney

 *This session will be pre-recorded. All CEUs are available for this recording except CMEs.


A Health Literate Approach to Create a Virtual Sickle Cell Trait Education Program

Mary A. Abrams
The Ohio State University College of Medicine


How can technology facilitate sexual and reproductive health literacy among students within the college clinic setting?

Cheryl A. Vamos
University of South Florida


Digital storytelling as a health literate tool to motivate and educate diverse kidney patients about living donor kidney transplant

Emily H. Wood
UCLA David Geffen School of Medicine



1:00 pm – 1:50 pm (ET)

Lunch

Special Interest Group:
Measuring Environmental Health Literacy

Marti Lindsay
University of Arizona

Ben Richmond
University of Arizona

Kathleen Gray
University of North Carolina

Anna Hoover
University of Kentucky

Victoria Triana
UNC institute for the Environment

Description:

Environmental health literacy (EHL) is an emerging framework that defines the knowledge and skills that prepare people to make environmentally healthy and protective decisions for themselves, their families and their communities, using available environmental data. Working knowledge of environmental health sciences is critical for people to be able to generalize from one environmental exposure to others. The ability to accurately interpret science-related knowledge is an important dimension of EHL and should inform an individual’s ability to locate and use new information to understand the impact of additional exposures. Measurement of EHL may also include assessment of self-efficacy for health-protective behaviors, especially where behavior change is an identified outcome.


1:00 pm – 1:50 pm (ET)

Lunch

Special Interest Group:
Nursing: Research, Practice and Interprofessional Partnerships for Promoting Health Literacy

Joy Deupree
University of South Carolina College of Nursing

Cathy Meade
H. Lee Moffitt Cancer Center and Research Institute

Lakeshia Cousin
Moffitt Cancer Center

Description:

Nurses are at the forefront of health care worldwide and are increasingly vital to integrating health literacy into practice, research and education. The integration of health literacy improves care at the bedside, in the community and through interprofessional partnerships using translational research. This Special Interest Group (SIG) highlights the importance of training programs and initiatives at the local, state and national level to bolster nurses' knowledge and skills in health literacy, emphasizing the importance of nurse-led translational research to improve practice and health outcomes and also advocate for community-engaged activities that strengthen consumer understanding about health promotion practices across the learning continuum. Patient engagement, empowerment, and optimal health outcomes will not be achieved unless health literacy is applied universally to each patient in every health care encounter. Providing culturally-competent nursing techniques, including the use of universal health literacy toolkits in health care, can significantly influence how patients perceive and understand health information. Further, this SIG also is intended to generate ideas and discussion from participants about how nurses and other health researchers can be champions for driving health literacy initiatives towards health equity.


1:00 pm – 1:50 pm (ET)

Lunch

Special Interest Group:
Building a Culture of Health Literacy During COVID-19

Iris Feinberg
Georgia State University

Michelle Hutchinson
Centers for Disease Control & Prevention

Rene Esler
JSI Research & Training institute, INC

Brandi Hackett
Family Private Care

Mary Helen O'Connor
Georgia State University

Description:

Low health literacy can affect everyone and techniques used to improve the content and delivery of health communication should be universal. Individual health literacy is also contextual and situational – many of us, even highly-skilled readers, are struggling with the barrage of information, misinformation, and conflicting information about COVID-19. Generally, however, low health literacy is highly correlated with lower levels of educational attainment, being a minority, limited English proficiency, having low reading skills and other measures of lower socio-economic status. Research tells us that individuals with lower health literacy also tend to have lower digital skills and less access to the internet, which is incredibly problematic when so much COVID-19 information is disseminated online. Individuals who tend to have low health literacy are struggling with caring for themselves and their families during this crisis because they cannot access, understand, or use COVID-19 health information.


1:50 pm – 2:20 pm (ET)

Introduction - Cynthia Baur, PhD
UMD Horowitz Center for Health Literacy

Plenary: Reaching the Hispanic Community in Times of Crisis – Lessons from Por Nuestra Salud y Bienestar

Anna Maria Izquierdo-Porrera MD PhD
Care for Your Health, Inc

Gianina Hasbun
Latino Health Initiative, Montgomery County DHHS

Nora Morales
Identity, Inc

Description:

In this session, we will draw from our experiences and discuss the key elements for effectively engaging Hispanic communities to access services and care for their health. Por Nuestra Salud y Bienestar (For Our Health and Wellbeing) is a private-public partnership established in Montgomery County, Maryland to tackle the health disparities suffered by Latinos during the COVID-19 pandemic. A crucial element of this project has been the communication efforts specifically designed to reach underserved communities. 

Objectives:

  • Describe the importance of going beyond linguistic competence
  • Identify trust brokers in the community you are serving
  • Describe the process for designing an effective communication campaign to reach your community

2:30 pm – 4:00 pm (ET)

Breakout Session D

Workshop: Optimizing Medication Information

Annlouise Assaf
Pfizer / Brown University

Candida Halton
Studio Health

Michael Wolf
Northwestern University

Stacy C. Bailey
Northwestern University

Asia Lem
Pfizer

Description:

The quality of health information can affect patient understanding and activation which, in turn, can greatly affect trial recruitment and participation as well as the safe and appropriate use of treatments. There is increasing interest throughout the healthcare industry in optimizing and evaluating information by leveraging both existing internal and external methods and expertise. Industry trends and focus on patient centricity have led to an increase in the development of patient-facing content for general use and regulatory submission.

In this workshop you will learn how to develop a consistent approach to optimizing medication information that objectively assesses these documents following evidence-based health literacy best practices. You will be walked through these recommendations in a step by step process with an industry use case. In addition, you will lean how to optimize information about medication and treatment to improve understandability and actionability while supporting adherence to company guidance on best practices involving patients, healthcare providers and subject matter experts.


2:30 pm – 4:00 pm (ET)

Oral Abstract Session IV

Moderator

Tetine Sentell


Deaf Community’s Access to Internet and eHealth Literacy

Surya Sahetapy
Rochester Institute of Technology


Double Disparity in Deaf and Hard of Hearing College Students’ Health Literacy

Ashley Mussallem
Rochester Institute of Technology


Parent Health Literacy and Environmental Health-related Perceptions of Risk and Motivation to take Action

Alexander F. Glick
NYU School of Medicine


Improving Awareness of Emotional Wellness Among Rural Arkansans: Development and Implementation of a Health Literacy Based Intervention

Jennifer M. Gan
University of Arkansas for Medical Sciences

Tiffany Haynes
University of Arkansas for Medical Sciences

Alison Caballero
University of Arkansas for Medical Sciences


4:00 pm (ET)

Adjourn

HARC Agenda – Wednesday, October 21

10:45 am – 11:25 am (ET)

Opening - Michael Villaire, MSLM
Institute for Healthcare Advancement


Plenary: Disseminating Culturally Relevant Social Media Messages

Sloane Bickerstaff, MPH 
Centers for Disease Control and Prevention

Description:

This session will focus on how to use research to create and disseminate culturally relevant social media messages



Objectives:

  • Developing an understanding of the interface between individuals’ ethnic and racial experiences and their health beliefs.
  • Gain awareness of the racial and cultural socialization of individuals in communities of color, as it may assist in finding culturally congruent ways to connect on social media and build trust.
  • How to use research to create messages and locate your social media audience.

11:30 am – 1:00 pm (ET)

Breakout Session E
Panel: The COVID-HL Consortium: Overview and Results Around Digital Health Literacy in University Students from an International Network of Partners from 44 Countries

Orkan Okan
Bielefeld University

Angela Y.M Leung
The Hong Kong Polytechnic University

Rafaela Rosário
University of Minho

Linh Hoang Thuy Nguyen
Hue University of Medicine and Pharmacy

Description:

The COVID-HL Consortium, an international network of partners from 44 different countries seeking to understand digital health literacy in relation to COVID-19 at a global level, was formed in March 2020. The focal population in the first waves of surveys is university students. Using shared data collection instruments, members of the COVID-HL Consortium have collected data from over 40,000 university students. 

In this panel, the COVID-HL Consortium co-leader/founder, will give an overview of the Consortium, information about the harmonized data elements, and preliminary results from the large sample. Distinguished panelists from three diverse settings (China/Philippines/Malaysia/Singapore, Portugal, and Vietnam) who are participating in the Consortium will then present findings from three specific study sites and efforts. This will be followed by an overview of next steps for this effort and discussion/Q&A with audience members.


11:30 am – 1:00 pm (ET)

Oral Abstract Session V

Moderator

Lakeshia Cousin


Validation of Three Question Health Literacy Screener in Determining Health Literacy as Compared to Existing STOFHLA

Katherine R. Burkhart
Wichita State University


Development of A skills-based Measure of Health Literacy Regarding on Diabetes and Its Impact on Patients' Glycemic Control

Xinying Sun
Peking University


Evaluating the Validity of a Computational Linguistics-Derives Automated Health Literacy Measure Across Race/ Ethnicity

Dean Schillinger
University of California San Francisco


Concurrent validity of Pictorial Fit-Frail Scale (PFFS) in Older Adults Male Veterans with varying levels of Health Literacy

Lubna Nasr
University of Miami


1:00 pm – 1:30 pm (ET)

Closing

Cynthia Baur, PhD
UMD Horowitz Center for Health Literacy

Michael Villaire, MSLM
Institute for Healthcare Advancement

Michael Paasche-Orlow MD, MA, MPH
Boston University Medical Center